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Purpleshekat
Starlite Member
Username: Purpleshekat
| | Posted on Saturday, March 29, 2008 - 12:13 pm: | 
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How are the twins doing? I know much takes TIME and PATIENCE, but hug/kiss these BOTH angels for me! Many care deeply for Julie and Alanna! They and you all are in my thoughts and in all my prayers! STAY STRONG! and Feel the energy come forth! Lord, BLESS these little ones with a miracle to see this all through! as only you can do!Amen!
Warmest Blessings and Inner Peace! Warrior Lady Sheoooxo
STay Positive!
STay STrong!
ILLUMINATING*PassionPurple
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Gabrielle_s
Starlite Member
Username: Gabrielle_s
| | Posted on Thursday, March 27, 2008 - 02:40 pm: |
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Thank you so much Jollynoblefrog! And Lady Shekat, your optimism is a true source of inspiration! I am so grateful to all who are praying for these precious little ones.
Love,
Gabrielle |
Purpleshekat
Starlite Member
Username: Purpleshekat
| | Posted on Wednesday, March 26, 2008 - 08:02 am: |
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 I'm staying POSITIVE through all this with ya's!
These Angels will pull through, a long process but strength and wisdom is coming!
They have been in my heart and soul, since the 1st. day I saw them online and read their sad life story!
AS we continue for many answers and healings' for Julie and Allana, Dr's and all involved in their lasting care! KNOW they will feel a tremendous strength coming! and staying with their little sweet souls!
Many blessings to YOU ALL!
Warmly and in Prayer and Thought, Warrior Purple Lady Sheooxoo
STay Positive!
STay STrong!
ILLUMINATING*PassionPurple
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Jollynoblefrog
Starlite Member
Username: Jollynoblefrog
| | Posted on Tuesday, March 25, 2008 - 03:14 pm: |
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Please knowthatjollynoblfrog is praying also |
Gabrielle_s
Starlite Member
Username: Gabrielle_s
| | Posted on Monday, March 24, 2008 - 07:26 pm: |
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UPDATE ON THE BABIES
Julie had blood drawn today to check for liver function at the local hospital where the twins were born. Dr. Alla said that she has been practicing for 30 years and have never seen a case such as our granddaughters and said that they will be studied for years. I spoke with Marcia on last Friday and she said that the doctors at Hasbro Children's Hospital in Providence told them that the girls will probably be checked every 2 weeks. On Thursday they go back to the Children's hospital for an EKG on Julie's heart and also to start more testing on Alanna. We will post updates as we know them.
One thing that we reported was incorrect. Ryan told us that Julie is missing her descending aorta. She is missing the inferior vena cava. The inferior vena cava (or IVC) is the large vein that carries de-oxygenated blood from the lower half of the body (including the kidneys) into the heart. I am not sure which is worse, but God knows and will give her the life that is pleasing to Him.
Many blessings,
Mary
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Gabrielle_s
Starlite Member
Username: Gabrielle_s
| | Posted on Saturday, March 22, 2008 - 02:54 pm: |
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I just received the following update on the babies. As you can see, your love and prayers are so very, very much appreciated by the family. Please, let's stay in prayer.
Love,
Gabrielle
I am overwhelmed and in awe over the love and prayers from all over the world. I had no idea that there would be so many people sending our request to other news groups, blogs, prayer lists and even poetry websites?! We serve a MIGHTY God and we know that He didn't make a mistake with our precious babies. Thank you from the bottom of all of our hearts. We are truly loved! We will post updates as we get them.
Blessings to you and your family at our most precious time of year.
With Christ's love,
Mary
Mary Bay
Cutting Edge Ministries
mary@cuttingedge.org
866-909-2850
Psalm 31:24
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Tinyteddy
Starlite Member
Username: Tinyteddy
| | Posted on Saturday, March 22, 2008 - 12:02 pm: |
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My thoughts and prayers are with you through this difficult time I will keep them in my prayers.
True love will find you
when you least expect it.
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Doc_dyr
Starlite Member
Username: Doc_dyr
| | Posted on Saturday, March 22, 2008 - 11:50 am: |
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my heart goes out to these two beautiful little babies and pray for them daily. and for there family to stay strong as God heres and answers prayer
doreen
may life give you it's best, and you live life to your best
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Gabrielle_s
Starlite Member
Username: Gabrielle_s
| | Posted on Saturday, March 22, 2008 - 05:57 am: |
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I am overwhelmed by the love and compassion you all have shown to these precious babies. We serve a God who is greater than any illness or defect. Let us continue to pray for them.
Much love and thanks to all of you.
Gabrielle |
Purpleshekat
Starlite Member
Username: Purpleshekat
| | Posted on Saturday, March 22, 2008 - 05:37 am: |
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At Hasbro Children’s Hospital just a few miles from their home. YOU are so blessed, wonderful HOSPITAL and very caring Dr.s/Nurses, my daughter was here many times for Health reasons! My prayers in the next month will be ONE of many, of the strongest kind in your direction from our home in SEEKONK, Ma! to these beautiful angels that God blessed you with! Faith and more will be restored! as your heart explore the positive energy being needed now most of all! Through him, all is Possible as a healing is taking place we PRAY!
STay Positive!
STay STrong, Mom - Dad, Family, Friends and many more who touch these children's spirits that are so adored! And I hope for all family members to have prayers sent to them, to find a way to be close! STay Close and just be there! AS strength in numbers will be their answers!
Much love (Again) and Warmest Energy of Healings to these Angels/families!
STay Positive!
STay Strong!
Warmly, Warrior Purple Lady Shexooo
PLEASE! Keep us informed, the best you can! OUR HEARTS, Thoughts and Prayers are with you ALL!
ILLUMINATING*PassionPurple
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Purpleshekat
Starlite Member
Username: Purpleshekat
| | Posted on Saturday, March 22, 2008 - 05:17 am: |
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I am sending prayers up to these little ones heart, that their strength be from this start! That Dr.s and everyone around them guide them to a healing of many miracles, God you have them in your plans, give them strength, Healings and many prayers at this most difficult times in your lives! Such an adorable baby pict. and SEE no wrong or health problem here- Amazing, may all our prayers be lifted to their sweet angelic hearts and souls, that the love around them - They will come to FEEL, SEE and KNOW! Amen!
Much love and blessings! Warrior Purple Lady Shexooo
STay Positive!
STay Strong!
Warwick, R.I. Part of my family lives up that way, by the Airport - May you feel the energy of all our LOVE!
ILLUMINATING*PassionPurple
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Melissapowell30
Starlite Member
Username: Melissapowell30
| | Posted on Friday, March 21, 2008 - 08:22 pm: |
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I am so sorry to hear that these little angels are so ill. I ask our Lord who hears our prayers to touch these little babies, give them strength to survive until something can be done. And for the Lord to guide all the medical team to do their best to help them...and lastly for the family, for faith, hope and stength, Amen
Melissa
Stare into your crystal ball what do you see? Are the lights so bright, your eyes so blind you'd close the book on me? Everything your after has been locked behind the door, lost without the key you wont be needing anymore.
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Aspiring_angel
Starlite Member
Username: Aspiring_angel
| | Posted on Friday, March 21, 2008 - 09:22 am: |
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Adding my prayers for these darling angels. They are so beautiful and their pictures and their needs have touched my heart greatly. My prayers for your family for strength as well.
Blessings,
Lesa
Lesa Gay Aspiring Angel
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Hhazlett26
Starlite Member
Username: Hhazlett26
| | Posted on Friday, March 21, 2008 - 06:35 am: |
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My thoughts and prayers are with these two sweet little angels and their family!! It sounds like they are being cared for by a very experienced group of people!! I hope and pray that everything goes well for these precious little ones!!
:-) Heather Hazlett
Give the Ultimate Gift
BECOME AN ORGAN DONOR
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Untanglynmymind
Starlite Member
Username: Untanglynmymind
| | Posted on Thursday, March 20, 2008 - 09:37 pm: |
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Sending immediate prayers up for these precious babies and for their family. May the Healing Angels of our Great Creator surround them. Loving thoughts being sent. Kayte
~MITAKUYE OYASIN~
("We are all related." ~ Cherokee)
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Fairystar50
Starlite Member
Username: Fairystar50
| | Posted on Thursday, March 20, 2008 - 09:33 pm: |
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prayers I shall pray and sending to bill keller to pray at his mintrsy
Debby
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Josharon
Starlite Member
Username: Josharon
| | Posted on Thursday, March 20, 2008 - 08:03 pm: |
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So many problems for two precious wee ones, but with God all things are possible. I shall be praying for them and for the family. May the Lord give strength and hope in the days ahead.
God bless you all,
sharon |
Rainspirit
Starlite Moderator
Username: Rainspirit
| | Posted on Thursday, March 20, 2008 - 07:58 pm: |
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My thoughts and prayers are with these wee ones and with the family..... |
Missing
Starlite Member
Username: Missing
| | Posted on Thursday, March 20, 2008 - 07:52 pm: |
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My heart is breaking for these
precious babies. I am sending
prayers for everyone involved.
God is an Awesome God.
He is all powerful
and merciful.
Dear Father,
I pray right now for these
two precious babies. Intercede
on their behalf Lord
send ministering Angels to
protect, watch over them
guiding the doctors and all
who work with them. Provide
a speedy and quick response
Lord. Guide this family
with knowledge to make the
proper decisions for these babies.
Even as Jesus is touched with our
infirmities how much more
Father God are you touched by
these innocent chldren's
immediate needs. As your word
says to "suffer the little
children to come unto me
and forbid them not", Lord
I remind you of your words
which are ever faithful and
true. Show your mercy and
loving kindness right now
Father I ask believing
in the name of Jesus
whatsoever I ask, it shall
be done. All honor, glory,
and praise is given to you
Father as you work miracles
for these sweet innocent
children. Amen and Amen!
Praying for strength for the
parents and grandparents as well.
May God help you during these
days ahead.
Hugs,
Sheila M. Williams |
Jmduca
Starlite Member
Username: Jmduca
| | Posted on Thursday, March 20, 2008 - 07:35 pm: |
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What little sweethearts they are. Oh my how I cannot help but think of all of what you folks are going through as you await updates on tests being performed on each little angel. BUT our Lord is the Almighty healer and can repair ANYHTHING. I shall hold both of these darlings in my prayers as I will for mom and dad and grampas and grandmas. YES they are meant to be right where they are for now. Excellent hospitals. Hold on to you faith and know that prayers are finding their way to heaven for this family. ~Jacie~
~Jacie Stralko Duca~
JMDUCA@webtv.net
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Gabrielle_s
Starlite Member
Username: Gabrielle_s
| | Posted on Thursday, March 20, 2008 - 06:41 pm: |
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I will let the pastor's letter speak for itself. Please pray for these babies.
Our family has just received devastating medical news, and we really need your fervent prayers.
Pictured at left are our beautiful identical twins, Julie and Alanna, born February 15 in Warwick, R.I. to our son Ryan and his wife Marcia. Julie was born 5lbs 13 oz, and Alanna was born 4lbs 12oz. They were apparantly in normal health.
This morning, we received the devastating news that these wonderful children have multiple, multiple birth defects.
At three weeks, Julie developed constipation. It was a week before her bowels moved. This incident was troubling for their Pediatrician, ‘Dr. Alla’, who made an appointment for an intestinal ultra-sound for Julie at Hasbro Children’s Hospital just a few miles from their home. There were more tests yesterday and Alanna had a cursory exam, but will be checked more thoroughly in a week or two, as she gets a little larger.
These are the multiple birth defects we know as of now:
1) Both girls have polysplenia. They each have 6 spleens. It is unsure if any of them are working and further testing is required.
2) Julie also has bi-lateral left-sidedness. This means that she has 2 left lungs, missing the 3rd lobe that is present normally.
3) Julie has no descending aorta from her heart! Her tiny body has adjusted already, creating several small blood vessels to carry blood away from her heart. However, this is no long-term solution and Julie may die if doctors cannot create an aorta.
At this time, the doctors are unsure if Julie has other heart abnormalities. Further testing is required.
4) Julie also has a problem with the location of her duodenum (connector from stomach to small intestine). It is rotated and may be the cause of her recent bowel problem. In the future, she will have to be closely monitored for bowel obstructions.
Testing is under way to determine if the girls are identical twins. Because they were not in the same amniotic sac, it was assumed that the girls are not. However, since both girls have 6 spleens, it is imperative that doctors know for sure; if they are identical twins, Alanna will most definitely have each of the medical defects which have already been identified in Julie. Since Alanna has already been diagnosed as having 6 spleens just as does Julie, doctors are believing right now that she has all the birth defects of Julie. Alanna is the smaller one so testing will have to wait a short while.
Many doctor appointments and medical tests are ahead for our sweet babies.
Of course all of us are heartbroken over the news of sweet Julie and Alanna. We really need your prayers, for healing especially.
We are also sad that Ryan, Marcia, Isaac and the girls won’t be moving to South Carolina to live close to Gramma, Grampa and Uncle Danny. They were planning to move down here in July of this year. We were all looking forward to them being here so we could be an integral part of their lives and we could be family support for them. However, there is no better place in the entire USA for them to be medically treated than in the Northeast. Not only are they just a few miles from Hasbro Children’s Hospital in Providence, Rhode Island, but they are only about 50 miles from Boston Children’s Hospital as well.
They are also fortunate to have a great church, Friendship Baptist in Warwick, R.I. Ryan was interim pastor there for 2 & ½ years until a new pastor was hired this January. Pastor Robert and Pam Mathis are wonderful people who have helped them immensely so far. Please pray with us that several people will find time in their busy schedules to help out when needed, as we cannot be physically there. However Friendship is so small, the resources they can bring to bear are not great.
One thing that we know is that God is in control. We praised God when these babies were born and though we are devastated now, we are still praising God for all things. Please agree with us in prayer for all things related to this news; we are especially concerned for Marcia, our wonderful Daughter-in-law. We have not talked to her since Ryan called early this morning, but I know that she must be especially devastated as only a mother can be. Please pray for heart-peace and rest for her.
We are comforted by Scripture at this point. A few of our favorites:
"Many evils confront the consistently righteous, but the Lord delivers him out of them all." - Psalm 34:19
"... they who seek (inquire of and require) the Lord by right of their need and on the authority of His Word, none of them shall lack any beneficial thing." - Psalm 34:10b
"This poor man cried, and the Lord heard him, and saved him out of all his troubles. The Angel of the Lord encamps around those who fear Him, who revere and worship Him with awe, and each of them He delivers." - Psalm 34:6
"I WILL bless the Lord at all times; His praise shall continually be in my mouth ... O magnify the Lord with me, and let us exalt His name together." - Psalm 34:1, 3
"So too the Holy Spirit comes to our aid and bears us up in our weakness; for we do not know what prayer to offer nor how to offer it worthily as we ought, but the Spirit Himself goes to meet our supplication and pleads in our behalf with unspeakable yearnings and groanings too deep for utterance. And He Who searches the hearts of men knows what is in the mind of the Holy Spirit [what His intent is], because the Spirit intercedes and pleads before God in behalf of the saints according to and in harmony with God's will. We are assured and know that, God being a partner in their labor, all things work together and are fitting into a plan for good to and for those who love God and are called according to His design and purpose." (Romans 8;26-28)
Please be in much prayer for all of us at this most difficult time.
May Jesus Richly Bless You,
David, Mary, and Danny Bay
Cutting Edge Ministries
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